Friday, September 21, 2018

Dementia is a a son of a bitch



I’ll start by apologizing if I offended anyone by the title of this writing.  I spent the late morning and early afternoon with my mother and her sister, my Aunt Bobbie.  Bobbie drove by herself from Denver Colorado to spend time with her only sibling, my mother.  Bobbie has had the good fortune of beating the odds and not being afflicted by dementia.  Their father, my grandfather, was not so fortunate.  When I see my mother struggling to find her words I am, painfully, reminded of him. 

My grandfather’s dementia began to affect his gait and balance. One day, while taking his daily shower, he became unsteady on his feet and grabbed the towel bar. According to my grandmother, it didn’t work.  He fell to the ground with the towel bar in his hand, ripped from the wall.  My grandfather was a large man.  Not slight of build and not heavy, but in between.  He was the only man I have ever seen that looked regal in his overalls he wore while farming.   

My grandmother decided that my grandfather needed care that she could not provide.  He was placed in a long-term care facility.  It was the only one in Bedford, Iowa.  She tried to make his room as comfortable as was possible.  A recliner was placed in the room, as was a television. Despite these comforts of home, my grandfather was saddened.  Saddened by not living in the home he had earned by his hard work. Sometimes he farmed for 14 hours a day.

I was close to my grandfather and I adored him.  He must have known this somehow and reciprocated with kindness and love.  He phoned me one night shortly after he was placed in the nursing home.  He said that he was “losing his mind”: that he couldn’t find his words to effectively communicate.  I believe a loss of this type is a large blow to a man who was quiet yet thoughtful.  He was a listener instead of a talker.  When he did speak, however, his words were thoughtful and picked with precision.

My grandfather passed away from a heart attack.  He had been in the nursing home for one week.  I think his heart gave out around the time he realized that his cognition was deteriorating.  I do hope my mother is spared from this, but I feel I sadness for her loss of memory and ability to communicate her thoughts and feelings.  When Bobbie and I were with her today, I asked my mother how she was doing.  She replied that her mind was “jumbled”; that she was in “a terrible state.”  Bobbie and I got quiet. We knew that her sentiments were real, and we knew that we must give her the time, the respect to express her feelings. 

I wish that I could fix my mother—for her sake and for our sakes.  This is the situation however.  This is the luck of the draw.  Dementia is a son of a bitch.